In the early days of Samson's diagnosis, I was so nervous about 'going on' about Duchenne. I was worried that friends and people close to...

While I was scrabbling to take a decent selfie at London King's Cross Stationwith the Jurassic World dinosaur for our #JuneGiveaway...

So, how do you go about delivering the information that your son has a life-limited muscle wasting condition, will lose the use of first...

I’ve always been a planner. It was almost like a competition with myself, how much can I physically fit into our ‘spare time’. Weekends...

This is a weird one... I remember sitting writing the words below through unending tears, shaking, hardly able to see the screen but...

"No, sorry", or "I already donate to NSPCC" were the words I usually uttered to 'chuggers' on the streets; Professional Fundraisers paid...