Samson's MumMar 20, 20193 min readPower through vulnerability a journey into sharing - it's not just 'Duchenne again'In the early days of Samson's diagnosis, I was so nervous about 'going on' about Duchenne. I was worried that friends and people close to...
Samson's MumMay 31, 20181 min readWe have no time to wasteWhile I was scrabbling to take a decent selfie at London King's Cross Stationwith the Jurassic World dinosaur for our #JuneGiveaway...
Samson's MumMay 2, 20184 min readThe drip-feed - talking with your children about DuchenneSo, how do you go about delivering the information that your son has a life-limited muscle wasting condition, will lose the use of first...
Samson's MumApr 18, 20184 min readDont worry, be happy - feeling down as a Duchenne parentI’ve always been a planner. It was almost like a competition with myself, how much can I physically fit into our ‘spare time’. Weekends...
Samson's MumApr 6, 20185 min read'Your son might have Duchenne, we'll tell you in 6 weeks for certain'This is a weird one... I remember sitting writing the words below through unending tears, shaking, hardly able to see the screen but...
Samson's MumMar 22, 20183 min readI used to hate fundraising...."No, sorry", or "I already donate to NSPCC" were the words I usually uttered to 'chuggers' on the streets; Professional Fundraisers paid...