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    Samson's Mum
    • May 2, 2018
    • 4 min

    The drip-feed - talking with your children about Duchenne

    So, how do you go about delivering the information that your son has a life-limited muscle wasting condition, will lose the use of first his legs, then arms, need a power-chair full time and everything else associated with Duchenne. Its hard enough trying to find the words to tell adults. Now imagine trying to tell children. I know. It seems impossible. Its like ‘the birds and the bees’ once you start down the road of truth, there is no going back. But there are ‘milestone p

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    Strong for Samson

    lynnette@actionduchenne.org

    07920450231

    Cambridgeshire, UK

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