The drip-feed - talking with your children about Duchenne
So, how do you go about delivering the information that your son has a life-limited muscle wasting condition, will lose the use of first his legs, then arms, need a power-chair full time and everything else associated with Duchenne. Its hard enough trying to find the words to tell adults. Now imagine trying to tell children. I know. It seems impossible. Its like ‘the birds and the bees’ once you start down the road of truth, there is no going back. But there are ‘milestone p